Phenowise
How it works

A few minutes at a time. The whole picture at the appointment.

Phenowise is a loop you run in small pieces: add what's true, check in, record what changed and why, read what it adds up to, then bring it to the person treating you. Here is the whole of it, in the order you'll meet it.

  1. Start with a person and a condition.

    Add someone you care for, or add yourself. Then add a condition and say how sure you are about it: diagnosed, suspected, discussed with a provider, or not yet identified. Add the symptoms you're watching, in everyday words. If a label changes later, you change the label. The days you've recorded stay where they are.

    On the screenEach condition carries its status where you can see it: Diagnosed, Suspected, Discussed with provider, Unidentified.
  2. Check in, a few minutes at a time.

    For each symptom, three answers: Better, Same or Worse, with a note if you want one. Readings you can log any time, as often as you measure: mood, blood pressure, blood sugar, heart rate, water, stress. Once a week, a short round: sleep, exercise, meals, body measurements. You never have to fill in everything, and you can skip a week.

    Reminders come once, twice or three times a week, by text with email as backup, and only when an update is actually due.

    On the screen"Log a quick reading anytime, and do the weekly round when it's due." The weekly round shows how many of its four items are done.
    A check-inSample record · names and data are fictional
    How are your Epilepsy symptoms today?
    Seizures
    Previously: Better · updated 6 Aug
    BetterSameWorse
    Jerking motion of head
    Previously: Better · updated 6 Aug
    BetterSameWorse
    Arm spasticity
    Previously: Same · updated 27 Jul
    Note: "Calm and happy, very relaxed in general."
    BetterSameWorse
    3 of 3 symptoms answered · about two minutes · next round in a few days
    Three answers per symptom. A note if you want one. That is the whole check-in, and it is what makes the rest of the record possible.
  3. Record what changed, and why.

    Medications with their side effects, each side effect checked in on the same way: not present, no change, worse. When a dose changes, Phenowise asks why: breakthrough or not fully controlled, side effects, symptoms improved and stepping down, the doctor's adjustment, entered by mistake, or another reason in your words. That reason is what turns a number into a finding.

    Tests, as confirmed or potential, with the files attached. The providers involved, and since when. A journal in your own words for each condition, and each week a few questions about that condition, asked because of what you logged the week before.

    On the screen"Dosage changed from 600 mg to 900 mg. Reason: Breakthrough / not fully controlled. Prescribed by Dr K." Sample data.
    From the journalSample record · last 30 days
    August 20
    Abdominal pain (side effect) — reported as Better
    Epilepsy · Medication · 6:18 PM
    August 9
    When his words are harder to get out, what seems to help him most lately? — Music
    Autism spectrum disorder · Question · 9:37 PM
    August 7
    Clearing out and stomach is softer
    Constipation · Note · 9:49 PM · Casey Bennett
    August 6
    Arm spasticity — reported as Better — Calm and happy very relaxed in general
    Epilepsy · Symptom · 11:34 AM
    A side effect of one condition's medicine, a note about another condition, and a weekly question with its answer, all in one place and in order. That is how the abdominal pain and the stomach getting softer end up next to each other.
  4. Read what it adds up to.

    Every week, Phenostatus. What's different from the last report. What moved together in the record over the last eight weeks, counted, not diagnosed, worth a conversation and not a conclusion. Each condition on a Worse, Same, Better scale for this period and for the eight weeks behind it. Every treatment in one place, and what changed among them. If a sentence is wrong, you say so, and it is corrected.

    Review shows what you logged this period, over 30 days, 6 weeks or 3 months: how much was better versus worse, medication changes, where your trackers landed, and your notes. Trends draws conditions and symptoms side by side, with your medication changes marked on the line, and a view of what tends to move with what. Association, not causation. You decide what it means.

    On the screen"Your numbers in a sentence, assembled here, never a verdict."
    Phenostatus · by conditionSample record · week of Aug 31 – Sep 6

    Epilepsy

    Improving
    WorseSameBetter
    This period
    Not rated since Aug 6 Last 8 weeks
    Improving · 6 ratings

    Seizures showed a worsening episode in late March, followed by a broadly improving trend through April and May, with further episodes in late May and early June, before settling by August.

    Written every week from what was entered. Same words all week; a new report only when there is something new. If a sentence is wrong, you say so.
  5. Bring it to the appointment.

    The Clinical View is the same record in the language a clinician expects: a patient summary, a timeline by month, the active problems with their symptoms and medications, and ChartQ, the questions worth asking at this visit, with the provider's answer recorded against each one when you get it.

    The Entry Record is the printable version. Choose the date range and the sections, download the PDF, and walk in with the months between visits on paper. There's also a one-sheet emergency summary: medications, conditions, contacts. And behind all of it, a change log of every entry ever made, with who made it and when.

    On the screen"What you logged this period. A snapshot to bring to your next visit."
    Entry Record · at a glanceSample record · what they take, and for what
    Chronic conditions
    Medications
    Constipation
    Autism spectrum disorder
    Epilepsy
    Unidentified medical condition · no medication
    Polyethylene glycol 3350 17 g
    Risperidone 2 mg
    KEPPRA 500 mg · afternoon
    OXCARBAZEPINE 600 mg · morning, evening
    Prescribed for that conditionSide effect tracked under a different condition
    OXCARBAZEPINE (for Epilepsy) — its side effect Abdominal pain is being tracked under Constipation. The dashed line is that crossover; worth a look before adding anything else for it.
    The first page of the printable record. The dashed line is the kind of thing a fifteen-minute appointment never has time to find.
What it will not do

It surfaces. Your provider decides.

Phenowise does not diagnose, predict or treat. It organizes what you've recorded and shows you the shape of it. It is not connected to any hospital or health system, and nothing is pulled in from anywhere. The record belongs to the person it's about. From inside the app they can export all of it, delete all of it, or withdraw consent at any time.

Informational, never a diagnosis. That line is on every page of the app, and it is the design, not a disclaimer.

For caregivers

Your side of it.

Several people, one place.

Each person you care for has their own record. You act for them by a grant that is dated and can be taken back; they own the record, and you can step away at any time.

A check-in that is yours.

A short weekly check-in that remembers last week, and an honest look at how much you're carrying, drawn against a full-time job and what part-time help usually covers. None of it is required.

A journal only you can read.

Not about the care. That goes in their record. This one is yours, and next week's check-in starts from it.

Start with one person.

$1 for the first 14 days, then $49 a month for each person you're tracking. The account itself is free.